Our Projects

April 2019

In February/March 2016, BTAA was successful in being awarded a Cancer Australia grant providing co-funding for a project to develop new brain tumour resource materials, including for culturally and linguistically different (CALD) communities.

In the first year, the project Steering Committee and Project Team held meetings and agreed to two possible new resources based on ‘It’s Okay to Ask’ and a pictorial map of the Brain Tumour journey with information for the doctor to complete for each patient. The Team also compiled a list of existing brain tumour resources available in Australia.

In November 2016, the Steering Committee decided to go through an Ethics Committee process to get approval for the conduct of brain tumour patient consultation on the two new resources. Approval was granted in May 2017 by The University of Queensland.

In September 2017, six Focus Groups engaging brain tumour patients and carers were held in Brisbane, Sydney and Melbourne. Dr Danette Langbecker (a Steering Committee member for the project) led the consultations.
In 2018, the project completed the design of the two resources and commenced translation into the following languages:

• Arabic
• Simplified and Traditional Chinese
• Greek
• Italian
• Vietnamese
• Tagalog
• Hindi
• Punjabi
• Dari
• Spanish

The translation was undertaken by Polaron, a Melbourne based firm. Polaron also tests its translations with experts in each of the languages to ensure ease of understanding.

The project has also prepared a flier advising the availability of the two new resources in different languages.

Also, the project has identified an existing NEMICS video involving a high grade glioma patients/carer/family story for translation into the 10 languages. The video is being translated with sub titles in 10 languages and is expected to be completed this month.

The preparation of the brain tumour patient resources for both English speaking and CALD patients is unique. No other country has provided resources in the same number of languages for its brain tumour patients and so the resources are likely to be frequently read on the internet. It is hoped that the new resources and videos will be widely used across countries to provide SUPPORT to brain tumour patients.

The new materials will be placed on the BTAA website in May 2019. The new resources will be able to be easily downloaded and printed in whichever language is required. And medical staff will be able to provide brain tumour pathway information in the language of choice for patients and their families.

Launches of the new resources will be held in May 2019 in capital cities.

Read Tricia's June 2016 Progress Report. (pdf)

For more information on the project see our news page and contact Tricia by emailing secretary@btaa.org.au.

Thanks to Cancer Australia, The University of Queensland and NEMICS for your assistance in producing the new resources for patients.

A national launch of the new resources will be held in the first half of 2019.